Privacy Policy

Introduction and Acknowledgement of the Privacy Policy

Janssen Pharmaceuticals, Inc. respects your privacy and wants you to be familiar with how we collect, use, and disclose Personal Information. This Privacy Policy describes our practices in connection with information that we or our service providers collect through the website or application (hereinafter the “Service”) operated and controlled by us from which you are accessing this Privacy Policy. We encourage you to read the full Privacy Policy before using this Service or providing any Personal Information. By providing Personal Information to us or by using the Service, you acknowledge that you have read and understand this Privacy Policy.

For California residents, please see the supplement to this policy, Privacy Notice for California Residents.

For Nevada residents, please see the supplement to this policy, Privacy Notice for Nevada Residents.

Use of Service by Minors

The Service is not directed to individuals under the age of18, and we request that these individuals not provide Personal Information through the Service. If your child has submitted Personal Information and you would like to request that such Personal Information be removed, please contact us as explained in the “Contacting Us” section below.

Information Collection

We, our affiliates, our service providers, and our research partners will use your responses from the surveys, polling questions, and frequently asked questions that you provide to show you how your response compared to responses from others in the community, and to use the responses in our research. We will also share the responses with our partner, the Myasthenia Gravis Foundation of America (MGFA), to support their research and for patient awareness.

If you participate in our Shared Experiences campaign, we, our affiliates, and our service providers will use your name, image or video, and story to share with others through the website, once we have reviewed your input for appropriateness. You also have a choice whether you would like your experience to be considered by us for use in our promotional and patient outreach campaigns.

If you join the community, we, our affiliates, and our service providers will use the information you provide to send you requested messages. You may unsubscribe by following the instructions at the bottom the email messages that we send you.

We may combine the information you submit with other information that we might collect from you, whether online or offline, including, for example, discussions with you over the telephone or in person. We may also combine it with information we receive about you from other Johnson & Johnson affiliates and our research partners.

If you submit any Personal Information relating to another individual to us, you represent that you have authority to provide the information and to permit us to use the information in accordance with this Privacy Policy.

Sensitive Information

Unless we specifically request or invite it, we ask that you not send us or otherwise disclose any sensitive Personal Information (e.g., Social Security number, information related to racial or ethnic origin, political opinions, religion or philosophical beliefs, other health or medical condition not related to this Service, sex life or sexual orientation, criminal background, trade union membership, or biometric or genetic data for the purpose of uniquely identifying an individual) on or through the Service or otherwise directly to us.

Automatic Information Collection and Use

We and our service providers may automatically collect and use information in the following ways as you navigate around the Service:

  • From your browser: Most browsers provide certain information with each page request so the website content can be displayed and the website functions can be performed. Common information sent by your browser includes your device type (e.g., computer, mobile phone, tablet), device identifier, operating system name and version (e.g., Windows, MacOS, Android), screen resolution, Internet browser type and version, and language settings. We use this information so that Service functions properly.
  • Using cookies: Cookies are pieces of information stored directly on the computer you are using. Cookies allow us to collect information such as browser type, time spent on the Service, pages visited, and language preferences. We and our service providers use the information for security purposes, to facilitate navigation, display information more effectively, and to personalize your experience while using the Service. We also use cookies to recognize your computer or device, which makes your use of the Service easier, such as to remember what is in your shopping cart. In addition, we use cookies to gather statistical information about Service usage to continually improve its design and functionality, to understand how individuals use it, and to assist us with resolving questions regarding it. You can refuse to accept these cookies or delete them by following your browser’s instructions; however, if you do not accept them, you may experience some inconvenience in your use of the Service.
  • Using pixel tags, web beacons, clear GIFs, or other similar technologies: These may be used in connection with some Service pages and HTML-formatted e‑mail messages to, among other things, track the actions of users and e‑mail recipients, measure the success of our promotions and campaigns, and compile statistics about Service usage.
  • Internet protocol (IP) address: Your IP address is a number that is automatically assigned to your computer by your Internet service provider. An IP address is identified and logged automatically in our server log files whenever a user visits the Service, along with the time of the visit and the pages visited. Websites rely on IP addresses to know where to send back the responses to page requests. Collecting IP addresses is standard practice and is done automatically by many online services. We use IP addresses for purposes such as determining usage levels of our Service, diagnosing server problems, and administering the Service. We may also use the IP address to look up your approximate location (that is, the city and country to which the IP address is associated).

Information Use and Disclosure

We use and disclose information you provide to us as described to you at the point of information collection. Please see the section entitled “Choices and Access” below to learn how you may opt out of certain of our uses and disclosures.

Where required by applicable law, we will obtain your consent to our use of your Personal Information at the point of information collection. We may also use information from or about you as necessary to perform a contract, to comply with a legal obligation (for example, due to our pharmacovigilance obligations), or for our legitimate business interests. We may also rely on other legal bases, specifically for the following:

  • Providing the Service. We will engage in the following activities related to providing our Service and fulfilling your requests on the basis of our contractual relationship with you and/or to comply with a legal obligation:
    • To provide the functionality of the Service to you and to provide you with related customer service;
    • To respond to your inquiries and fulfill your requests, such as to send you documents or email messages that you request; and
    • To send you important information regarding our relationship with you or regarding the Service, changes to our terms of service and policies, and/or other administrative information.
  • Accomplishing our business purposes. We will engage in the following activities related to our business purposes on the basis of our contractual relationship with you, to comply with a legal obligation, and/or because we have a legitimate interest:
    • For data analysis, for example, to improve the efficiency of the Service;
    • For audits, to verify that our internal processes function as intended and are compliant with legal, regulatory, or contractual requirements;
    • For fraud and security monitoring purposes, for example, to detect and prevent cyberattacks or attempts to commit identity theft;
    • For developing new products and services;
    • For enhancing, improving, or modifying our website or products and services;
    • For identifying Service usage trends, for example, understanding which parts of our Service are of most interest to users; and
    • For determining the effectiveness of our promotional campaigns so that we can adapt our campaigns to the needs and interests of our users.
  • Personalizing the Service. We will provide personalized services either with your consent or because we have a legitimate interest:
    • To better understand you so that we can personalize our interactions with you and provide you with information and/or offers tailored to your interests; and
    • To better understand your preferences so that we can deliver content via the Service that we believe will be relevant and interesting to you.

We also disclose information collected through the Service:

  • To our affiliates for the purposes described in this Privacy Policy. A list of our affiliates is available at https://johnsonandjohnson.gcs-web.com/financial-information/sec-filings (click on the link for Form 10K, Exhibit 21, under “SEC Filings”). Janssen Pharmaceuticals, Inc.is the party responsible for the management of the jointly used Personal Information;
  • To our third-party partners with whom we offer co-branded or co-marketed promotions;
  • To our third-party service providers who provide services such as website hosting and moderating, mobile application hosting, data analysis, payment processing, order fulfillment, infrastructure provision, IT services, customer service, e-mail and direct mail delivery services, auditing, and other services, in order to enable them to provide services; and
  • As permitted by applicable law, to a third party in the event of any reorganization, merger, sale, joint venture, assignment, transfer, or other disposition of all or any portion of our business, assets, or stock (including in connection with any bankruptcy or similar proceedings).

In addition, we may use and disclose your information as we believe to be necessary or appropriate: (a) to comply with legal process or applicable law, which may include laws outside your country of residence; (b) as permitted by applicable law to respond to requests from public and government authorities, which may include authorities outside your country of residence; (c) to enforce our terms and conditions; and (d) to protect our rights, privacy, safety, or property, and/or that of our affiliates, you, or others. We may also use and disclose your information in other ways, after obtaining your consent to do so.

We may use and disclose information we collect automatically as described above under “Automatic Information Collection and Use.”

In addition, where allowed by applicable law, we may use and disclose information that is not in personally identifiable form for any purpose. If we combine information that is not in personally identifiable form with information that is identifiable (such as combining your name with your geographical location), we will treat the combined information as Personal Information as long as it is combined.

Choices and Access

Choices Regarding Our Use and Disclosure of Your Personal Information

We give you choices regarding our use and disclosure of your Personal Information for marketing purposes. You may opt-out from:

  • Receiving marketing communications from us. If you no longer want to receive marketing communications from us on a going-forward basis, you may opt-out of receiving them by contacting us via +1-800-JANSSEN (526-7736) or send a written request to Janssen Medical Information, PO BOX 200 Titusville, NJ 08560 USA. In your request to us, please provide your name, identify the form(s) of marketing communications that you no longer wish to receive, and include the address(es) to which it/they are sent. For example, if you no longer wish to receive marketing e-mails or direct mail from us, tell us that, and provide your name and e-mail or postal address. You may opt-out of receiving marketing e-mails from us by following the unsubscribe instructions provided in any such message.
  • Receiving reminders from us. If you no longer want to receive reminders from us on a going-forward basis, you may opt-out of receiving them by contacting us via +1-800-JANSSEN (526-7736) or send a written request to Janssen Medical Information, PO BOX 200 Titusville, NJ 08560 USA. In your response to us, please provide your name and the e-mail address or phone number at which you receive reminders from us.
  • Our sharing of your Personal Information with affiliates and third-party partners. If you previously opted-in to receiving marketing communications from our affiliates or third-party partners, you may opt-out of our sharing of your Personal Information with those parties for their direct marketing purposes on a going-forward basis by contacting us via +1-800-JANSSEN (526-7736) or send a written request to Janssen Medical Information, PO BOX 200 Titusville, NJ 08560 USA. In your communication to us, please state that we should no longer share your Personal Information with our affiliates and/or third-party partners for their marketing purposes and include your name and e-mail address.

We will seek to comply with your request(s) as soon as reasonably practicable. Please note that if you opt-out as described above, we may not be able to directly remove your Personal Information from the databases of our affiliates with which we have already shared your information (that is, as of the date that we implement your opt-out request). However, we will make reasonable efforts to inform our affiliates of your request. Please also note that if you opt -out of receiving marketing-related messages from us, we may still send you important transactional and administrative messages, from which you cannot opt -out.

How You Can Access, Change, or Delete Your Personal Information

If you would like to review, correct, update, restrict, or delete your Personal Information, or if you would like to request an electronic copy of your Personal Information for purposes of transmitting it to another company (to the extent these rights are provided to you by applicable law), please contact us via +1-800-JANSSEN (526-7736) or send a written request to Janssen Medical Information, PO BOX 200 Titusville, NJ 08560 USA. We will respond to your request as soon as reasonably practicable and no later than one month after receipt. If circumstances cause any delay in our response, you will be promptly notified and provided a date for our response.

Cross-Border Transfers of Your Personal Information

Your Personal Information may be stored and processed in any country where we have facilities or service providers, and by using our Service or by providing consent to us (where required by law), your information may be transferred to countries outside of your country of residence, including to the United States, which may provide for different data protection rules than in your country of residence.  Nonetheless, appropriate contractual and other measures are in place to protect Personal Information when it is transferred to our affiliates or third parties in other countries.

Security of Your Personal Information

We seek to use reasonable organizational, technical, and administrative measures designed to protect Personal Information under our control. However, no data transmission over the Internet or data storage system can be guaranteed to be 100% secure. If you have reason to believe that your interaction with us is no longer secure (for example, if you feel that the security of any account you have with us has been compromised), please immediately notify us in accordance with the “Contacting Us” section below.

Retention Period

We will retain your Personal Information for as long as needed or permitted in light of the purpose(s) for which it was obtained. The criteria used to determine our retention periods include: (i) the length of time we have an ongoing relationship with you and provide the Service to you; (ii) whether there is a legal obligation to which we are subject; and (iii) whether retention is advisable in light of our legal position (such as in regard to applicable statutes of limitations, litigation, or regulatory investigations).

Third Party Websites and Services

This Service may contain links to websites of third parties. This Privacy Policy does not address, and we are not responsible for, the privacy, information, or practices of any third parties, including any third party operating any website or online service (including, without limitation, any application) that is available through this Service or to which this Service contains a link. The availability of, or inclusion of a link to, any such website or property on the Service does not imply endorsement of it by us or by our affiliates.

Contacting Us

Janssen Pharmaceuticals, Inc., located at 1125 Trenton-Harbourton Road, Titusville, NJ 08560 USA, is the company responsible for the collection, use, and disclosure of Personal Information under this Privacy Policy.

If you have any questions about this Privacy Policy, please contact us as follows:

Janssen Medical Information, PO Box 200 Titusville, NJ 08560 USA
https://www.janssen.com/us/contact-us
+1-800-JANSSEN (526-7736)

Updates to this Privacy Policy

We may change this Privacy Policy. Any changes to this Privacy Policy will become effective when we post the revised Privacy Policy on the Service. Your use of the Service following these changes means that you accept the revised Privacy Policy. We recommend that you regularly review the Privacy Policy when you visit the Service. This policy was last updated on [DD Month 2021].

PRIVACY NOTICE FOR CALIFORNIA RESIDENTS

This Privacy Notice for California Residents (“Notice”) supplements the information contained in the Privacy Policy (above), and applies only to California residents (“you,” “your” or “consumer”).

Personal Information Collection and Purposes of Use

We collect and use information that identifies, relates to, describes, references, is capable of being associated with, or could reasonably be linked, directly or indirectly, to you or your devices when you visit this website, provide us your Personal Information, or have a contractual or business relationship with us or any of our affiliates (“Personal Information”). The term Personal Information generally includes a range of direct identifiers (such as a a name, postal address, email address, or a government issued identifier) and also indirect identifiers that may identify, relate to, or be associated with a particular individual (such as a telephone number, device identifier, Internet Protocol (IP) address, or inferences about consumer preferences or characteristics).

We collect this Personal Information for the following purposes:

  • To respond to your inquiries and to fulfill your requests;
  • To send you important information regarding our relationship with you or regarding this website, changes to our terms, conditions, and policies and/or other administrative information;
  • For audits, to verify that our internal processes function as intended and are compliant with legal, regulatory, or contractual requirements;
  • For fraud or crime prevention, and for technical security monitoring purposes;
  • To facilitate the development of new products and services;
  • To enhance, improve or modify our website or products and services;
  • To data analysis that will allow us to understand website usage trends;
  • To determine the effectiveness of our promotional campaigns, so that we can adapt our campaigns to the needs and interests of our users; and
  • To better understand you, so that we can personalize our interactions with you and provide you with information and/or offers tailored to your interests.

Our Personal Information Handling Practices in the Preceding 12 Months

In the preceding 12 months, we have collected the following categories of Personal Information from California residents who have visited this website, provided us their Personal Information, or had or have a contractual or business relationship with us or any of our affiliates:

  • Direct identifiers as described above
  • Indirect identifiers as described above.

We have collected such Personal Information from one or more of the following categories of sources:

  • Information that you submit or share directly with us, through registrations, surveys, applications, or telephone calls, and email and postal communications;
  • Information passively collected from cookies and other website analytics;
  • Information collected through third parties or from your browsing activity on other websites, such as on social media platforms, and public databases;
  • One or more of our affiliates with which you have a business relationship;
  • Service providers with which we have a contractual relationship and to which you have provided Personal Information.

We collected such Personal Information for the purposes noted above (see “Personal Information Collection and Purposes of Use”) and in the Privacy Policy (see “Information Use and Disclosure” above):

  • We may have shared such Personal Information with the following categories of third parties:
    • Service providers that help us to run our business, such as call centers and order fulfillment and distribution companies, credit card processing companies, web hosting and development companies, and direct marketing agencies
    • Vendors that help us track the effectiveness of advertisements on our website
    • Vendors that help us to provide you with programs, services or educational information we believe may be of interest to you
    • Third parties with which we jointly market a product
    • Affiliates and subsidiaries that may have or may want to seek a business relationship with you.
  • We collected one or more of the following specific pieces of Personal Information:
    • Legal name, nickname, signature, email address, postal address, social security number, date of birth, driver’s license number, physical characteristics or description, educational level, current employment or employment history, biometric information, and/or geolocation data
    • Account name, bank account number, credit card number, debit card number, or any other financial information, medical information and/or health insurance information
    • Online identifier, Internet Protocol (IP) address, Internet or other electronic network activity information, including, but not limited to, browsing history, search history, and information regarding a consumer’s interaction with an Internet website, application, or advertisement.

Unless specifically stated, we do not share, disclose, or sell Personal Information to third parties for their own use, but we do share your Personal Information with our affiliates and trusted partners in arrangements that may meet the broad definition of “sale” under California law. In these arrangements, use of the information we share is limited by policies, contracts, or similar restrictions. We did not sell any consumers' Personal Information in the preceding 12 months.

Your Privacy Rights

You have the following rights regarding our collection and use of your Personal Information. To exercise those rights, you must submit a request by either calling us at +1-800-JANSSEN (526-7736) or through https://www.janssen.com/us/privacy-request/. We may ask you to provide additional information to verify your request. We may not discriminate against you if you exercise your rights as described in this notice. For example, we may not deny goods or services to you, charge you different prices or rates, or provide a different level of quality of products or services.

Right to Information

You have the right to request the following information regarding the Personal Information we have collected about you:

  • Categories of Personal Information collected about you and sources from which collected;
  • Our purpose for collecting Personal Information;
  • Categories of third parties with which the Personal Information was shared; and
  • Specific pieces of Personal Information collected about consumers.

You have the right to request the following information regarding the Personal Information we have sold or disclosed about you:

  • Categories of your Personal Information sold in the preceding 12 months;
  • Categories of third parties to whom your Personal Information has been disclosed; and
  • Categories of Personal Information that we disclosed about consumers for a business purpose.

Right to Opt Out of Sharing, Disclosure, or Sale of Personal Information

You have the right to direct us to not share, disclose, or sell your Personal Information. To exercise this right, you or your authorized representative may submit a request by clicking on the following link:

Do Not Sell My Personal Information

Right to Request Deletion

You have the right to request that we delete the Personal Information we have about you. However, we are not required to delete information if it is necessary to retain your information to:

  • Complete the transaction for which the Personal Information was collected, provide a good or service requested by you, conduct a transaction reasonably anticipated within the context of our or one of our affiliate’s ongoing business relationship with you, or to otherwise perform a contract we have with you;
  • Detect security incidents, protect against malicious, deceptive, fraudulent, or illegal activity or prosecute those responsible for that activity;
  • Debug to identify and repair errors that impair existing intended functionality;
  • Exercise free speech, ensure the right of another consumer to exercise his or her right of free speech, or exercise another right provided for by law;
  • Comply with the California Electronic Communications Privacy Act pursuant to Chapter 3.6 (commencing with Section 1546) of Title 12 of Part 2 of the Penal Code;
  • Engage in public or peer-reviewed scientific, historical, or statistical research in the public interest that adheres to all other applicable ethics and privacy laws, when deletion of the information is likely to render impossible or seriously impact the achievement of such research, if you have provided informed consent;
  • Facilitate solely internal uses that are reasonably aligned with your expectations based on your relationship with us or one of our affiliates;
  • Comply with a legal obligation; and
  • Otherwise use the Personal Information, internally, in a lawful manner that is compatible with the context in which it was provided.

Contacting Us

You may contact us with questions about this Notice or to exercise your rights as described in this Notice. Please contact us as follows:

Janssen Medical Information, PO Box 200 Titusville, NJ 08560 USA
https://www.janssen.com/us/privacy-request/
+1-800-JANSSEN (526-7736)
Contact Title: Privacy Manager

PRIVACY NOTICE FOR NEVADA RESIDENTS

This Supplemental Privacy Notice for Nevada Residents (“Notice”) adds to the information contained in the Privacy Policy (above), and applies only to Nevada residents (“you,” “your” or “consumer”).

Personal Information Collection and Purposes of Use

We collect certain Personal Information of Nevada consumers through the Service. The term Personal Information includes one or more of the following elements of personally identifiable information:

  • A first and last name
  • A home or other physical address that includes the name of a street and the name of a city or town
  • An electronic mail address
  • A telephone number
  • A Social Security Number
  • An identifier that allows a specific person to be contacted either physically or online
  • Any other information concerning a person collected from the person through the Internet website or online service of the operator and maintained by the operator in combination with an identifier in a form that makes the information personally identifiable.

We collect this Personal Information for the following purposes:

  • To respond to your inquiries and to fulfill your requests;
  • To send you important information regarding our relationship with you or regarding this Service, changes to our terms, conditions, and policies and/or other administrative information;
  • For audits, to verify that our internal processes function as intended and are compliant with legal, regulatory, or contractual requirements;
  • For fraud or crime prevention, and for technical security monitoring purposes;
  • To facilitate the development of new products and services;
  • To enhance, improve or modify our website or products and services;
  • For data analysis that will allow us to understand website usage trends;
  • To determine the effectiveness of our promotional campaigns, so that we can adapt our campaigns to the needs and interests of our users; and
  • To better understand you, so that we can personalize our interactions with you and provide you with information and/or offers tailored to your interests.

Your Privacy Rights

Right to Access or Correct Your Personal Information

If you would like to review, correct, or update your Personal Information, you or your authorized representative may submit your request to https://www.janssen.com/us/privacy-request/. We will respond to your verified request as soon as reasonably practicable, but no later than sixty (60) days after receipt. If circumstances cause a delay in our response, we will promptly notifiy you and provide a revised date for our response.

Right to Opt Out of the Sale of Personal Information

We generally do not disclose or share Personal Information for profit. Under Nevada law, you have the right to direct us to not sell or license your Personal Information to third parties. To exercise this right, if applicable, you or your authorized representative may submit a request to https://www.janssen.com/us/privacy-request/. We will respond to your verified request as soon as reasonably practicable, but no later than sixty (60) days after receipt. If circumstances cause any delay in our response, you will be promptly notified and provided a date for our response.

Contacting Us

You may contact us with questions about this Notice or to exercise your rights as described in this Notice. Please contact us as follows:

https://www.janssen.com/us/privacy-request/
+1-800-JANSSEN (526-7736)